Well, I started my diet this morning. It will be for six weeks, and then I start to reintroduce foods back over a couple of weeks.
I am not allowed to eat dairy, soya, wheat, rye, oats, sugar, premaid foods, processed foods, tap water or caffiene. I am also not allowed to eat much fruit, only one piece after every meal (HUGE cutdown for me!) and only certain types of crbohydrate; such as new potatoes, but not baked.
It's all rather confusing and boring, but it's quite exciting to think I'll know if/what I am sensitive to. I am already craving sugar!
I'm glad to see the update. I know it isn't gonna be easy, but I know you can do it! I am praying for you and wishing you all the best! Keep us informed on how things are going!
Jess, I am feeling for you... but at the same time, I am hoping for great rewards for you!! I really hope this gets you to feeling better!!!! You seems so energetinc in spirit, I would love to see this for you physically as well sweetie!!!
If you need to talk, you know where to find me.... keep the updates coming!!!
Awww, thanks guys! I was thinking you'd all forgotten a little!
Well, I have had nearly two weeks on the new treatment and it is going well so far. I have found the resting routine very hard to get into. Odd because I always thought I was good at taking it easy, but it turns out I am rubbish at it! Having to just lie there and do nothing so often is very hard!
I am now on Glutothione twice a day; D-Ribose six times a day, and tomorrow I start on Ascorbic Acid, which I will build up to three times a day. Only nine other meds to go til I'm on them all. And rattling! I was feeling pretty rough when I first started on them but it is a lot better now.
The diet is hard going. I am struggling to find things I am allowed, and want(!), to eat during the day. I seem to be living mostly on nuts! Very early on in the diet I found that I couldn't bare to eat eggs, tomatoes and mushrooms every day as is suggested by the Doctor! As you might be aware, I was a vegetarian but I have had to start eating chicken which I am torn over as I am enjoying the taste but am battling with moral and logical dilemmas! The problem is I just dont trust meat, having known someone die of CJD.
One thing I noticed almost immediately was that I had not been listening to my body all the time I've had M.E. It astonished me to realise this, but it's true. The new treatment is teaching me to listen to my body, and I have just come to know how ill I actually am.
I can definitely see that this new regime is helping me already. I had a few bad days at the begining; I dont know if that was the meds or withdrawal symptoms from a certain food group, but it only lasted a few days. I now have more energy and the pain is less. I think in the long term this could possibly be successful. I have tried so many things though so I am a little reluctant to place too much hope on this yet. Only time will tell. But one thing is for certain, I cannot wait to eat some chocolate!
Hey girlie, thanks for the update. It sounds crazy Jess and I honestly don't know how you are doing it and keeping up with it all! But is sounds like you are doing good and sticking with the plan. With all that you are putting into it, I do hope it pays off in the long run.
We have not forgotten, I have not forgotten... I think about you often!!!
I'm so happy to hear that you are noticing a difference on your new regime:) Hopefully you will keep getting better and better as time goes by. I bet you can't wait for Chocolate Day!..:)
You keep on going Jess, and on the days that you feel blah, just remember how good you are going to feel at the end of this:)
Jess, you're doing a wonderful job in a really tuff situation... We are all so proud of you and happy that you are noticing a difference in how you feel.. hang in there.. Deb
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siggy by Chicoluver The wind of anger blows out the lamp of intelligence.
I have been thinking of you and I'm thrilled that you are able to tell a difference already. I hope you have much continued success! Thank you for the update!